Q - Who should get genetic counseling? A - For Hereditary Breast and Ovarian Cancer Syndrome (BRCA1 and BRCA2), any of the following: 1) individuals with a personal or family history of breast cancer before age 50 or ovarian cancer at any age 2) individuals with two or more primary diagnoses of breast and/or ovarian cancer 3) individuals with a personal or family history of male breast cancer 4) relatives of an individual with a confirmed BRCA1 or BRCA2 mutation
A2 - *In general, anyone who has a personal or family history in which there is cancer at unusually early ages (such as colon cancer < 50y.o.), multiple relatives on the same side of the family with the same or related cancers, individuals with rare cancers or more than one primary cancer, or a relative with an identified mutation in a cancer-predisposing gene may benefit from genetic counseling and possibly testing.
Q - Do I need genetic counseling or can I just have the genetic testing? A - Genetic counseling is an important step in the genetic testing process for a number of reasons. Genetic counseling is necessary to discuss all of the issues surrounding the testing so that you can make an informed decision about testing. Genetic counseling also ensures that the most appropriate test is offered based on the types of cancer in the family history. In addition, genetic counseling provides accurate results interpretation and a plan to coordinate medical management.
Q - Will my insurance pay for the test? A - The cost of the genetic test can range from a few hundred to a few thousand dollars depending on the test. Each insurance policy differs on if and how much of the cost of testing will be covered though most people are successful in getting testing covered. In some cases medical information or letters of medical necessity must be submitted in order for the insurance company to authorize coverage. The genetic counselor will help determine what information is needed and assist you in obtaining insurance authorization.
Q - Is there a risk of insurance discrimination if I have testing through my insurance? A - It is against the law for health insurance companies to discriminate based on genetic test results. At this time, however, life insurance is not an area where there is protective legislation.
Q - How do I schedule an appointment and what do I need to bring? A - To schedule an appointment, please call (718) 670-2110. You can expect your initial visit to last approximately 1 ½ hrs as you will meet with the genetic counselor and one of the physicians at the Breast Center. You will need to bring a referral from your primary care doctor if your insurance requires it. In addition, you should be prepared to discuss a detailed three-generation family history. Doing some research ahead of time to find out who in the family has had cancer, what kind of cancer they had, how old they were when they were diagnosed, etc. will be helpful and allow for a more accurate risk assessment. It is also helpful to bring copies of any radiology reports, pathology reports, or letters from doctors.
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The Genetic Counseling program at the Breast Center at New York Hospital Queens provides services to individuals and family members who may be at higher risk for hereditary cancer syndromes. Learn More>>
